So I am a bad mom. I have not put a post out for Connor in three months. I know the whole word has anxiously been waiting for Connor updates. We have been really busy with work, getting ready to build our house (estimated move in date 6/10), and chasing around a toddler.
Health wise Connor is doing great. While he gets winded fairly easily because he still has a narrow airway, he does not let it slow him down. He is going 90 MPH all day until he goes to bed. His eating has also improved as he has relearned how to eat with the new airway set-up. Before the operation he had been well below the growth chart for months. He has now hit the 3% mark. We are very optimistic and hope for long term results, but we are happy with where we are at now and are willing to take this one day at a time.
So here is what Connor has been up to the last few months...
What in the world is wrong with me?
Besides developing an attitude at an early age, I have been diagnosed with Bilateral Vocal Cord Immobility (Paralysis). My vocal cords do move slightly, but do not open and close all the way like they should. Because they do not open all the way, my airway is too small for me to breathe if I have any swelling.
In July, my mommy and daddy took me up to Mayo to have a surgery done called vocal cord lateralization. They took one of my vocal cords and stitched it to the side of my larynx opening up my airway more. The surgery tripled my airway. Since the surgery we have had a few bumps in the road, but my recovery has gone very well.
My cords still do not work so we still have to be careful that I do not get sick, and I am still pretty squeaky when get excited or mad. My mommy and daddy pray everyday that my cords will start working. If they do not start working on their own in the next few years, we may need to have more surgeries to help open the airway more. The doctors are however optimistic that I may get movement back since they can not find a cause.
Feel free to email my mommy if you would like more info about my cord immobility. We will keep you updated on this site.
Love,Connor
In July, my mommy and daddy took me up to Mayo to have a surgery done called vocal cord lateralization. They took one of my vocal cords and stitched it to the side of my larynx opening up my airway more. The surgery tripled my airway. Since the surgery we have had a few bumps in the road, but my recovery has gone very well.
My cords still do not work so we still have to be careful that I do not get sick, and I am still pretty squeaky when get excited or mad. My mommy and daddy pray everyday that my cords will start working. If they do not start working on their own in the next few years, we may need to have more surgeries to help open the airway more. The doctors are however optimistic that I may get movement back since they can not find a cause.
Feel free to email my mommy if you would like more info about my cord immobility. We will keep you updated on this site.
Love,Connor
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