Connor was released from the hospital yesterday and is doing quite well. He has gotten his voice back, but it is not as loud as before, and we are very careful when we feed him as he is at high risk for aspiration. He also still has the stridor if he gets upset because there is still one vocal cord obstructing his airway.
We are still staying in Rochester for now as we have his follow-up appointment on Thursday. There is a small chance that we may get to head home on Thursday, but we will most likely be staying until Saturday. The doctor says she may want to do another Bronch on Friday to make sure there is no granulation tissue forming around the suture. So hopefully we will be home soon.
The two following posts below are some videos and pictures from the last few weeks.
What in the world is wrong with me?
Besides developing an attitude at an early age, I have been diagnosed with Bilateral Vocal Cord Immobility (Paralysis). My vocal cords do move slightly, but do not open and close all the way like they should. Because they do not open all the way, my airway is too small for me to breathe if I have any swelling.
In July, my mommy and daddy took me up to Mayo to have a surgery done called vocal cord lateralization. They took one of my vocal cords and stitched it to the side of my larynx opening up my airway more. The surgery tripled my airway. Since the surgery we have had a few bumps in the road, but my recovery has gone very well.
My cords still do not work so we still have to be careful that I do not get sick, and I am still pretty squeaky when get excited or mad. My mommy and daddy pray everyday that my cords will start working. If they do not start working on their own in the next few years, we may need to have more surgeries to help open the airway more. The doctors are however optimistic that I may get movement back since they can not find a cause.
Feel free to email my mommy if you would like more info about my cord immobility. We will keep you updated on this site.
Love,Connor
In July, my mommy and daddy took me up to Mayo to have a surgery done called vocal cord lateralization. They took one of my vocal cords and stitched it to the side of my larynx opening up my airway more. The surgery tripled my airway. Since the surgery we have had a few bumps in the road, but my recovery has gone very well.
My cords still do not work so we still have to be careful that I do not get sick, and I am still pretty squeaky when get excited or mad. My mommy and daddy pray everyday that my cords will start working. If they do not start working on their own in the next few years, we may need to have more surgeries to help open the airway more. The doctors are however optimistic that I may get movement back since they can not find a cause.
Feel free to email my mommy if you would like more info about my cord immobility. We will keep you updated on this site.
Love,Connor
1 comment:
Nikki emailed me the link for Connor's blog... very cool! I am so glad he's out of the hospital. Hope he is feeling better, and hope you guys are getting some rest! See you soon!
JoAnna
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