Just wanted to let everyone know that we got to come home on Friday. He had a bronch done Friday morning and the doctor says everything was healing wonderfully. We couldn't be happier. Connor is doing excellent and it like a new baby. I guess not being able to breathe can make you a little fussy.
We will have another bronch here locally in two weeks to check on how everything is healing again. We are still not sure what the long term plan is for this as no child has had this done long term yet, but we are very optimistic. If he does not regain function he may need to have the surgery redone as he grows or another type of corrective surgery may be needed. We still pray everyday that his cords will regain function.
We thank everyone for their thoughts and prayers during this very difficult time. They came to good use.
What in the world is wrong with me?
Besides developing an attitude at an early age, I have been diagnosed with Bilateral Vocal Cord Immobility (Paralysis). My vocal cords do move slightly, but do not open and close all the way like they should. Because they do not open all the way, my airway is too small for me to breathe if I have any swelling.
In July, my mommy and daddy took me up to Mayo to have a surgery done called vocal cord lateralization. They took one of my vocal cords and stitched it to the side of my larynx opening up my airway more. The surgery tripled my airway. Since the surgery we have had a few bumps in the road, but my recovery has gone very well.
My cords still do not work so we still have to be careful that I do not get sick, and I am still pretty squeaky when get excited or mad. My mommy and daddy pray everyday that my cords will start working. If they do not start working on their own in the next few years, we may need to have more surgeries to help open the airway more. The doctors are however optimistic that I may get movement back since they can not find a cause.
Feel free to email my mommy if you would like more info about my cord immobility. We will keep you updated on this site.
Love,Connor
In July, my mommy and daddy took me up to Mayo to have a surgery done called vocal cord lateralization. They took one of my vocal cords and stitched it to the side of my larynx opening up my airway more. The surgery tripled my airway. Since the surgery we have had a few bumps in the road, but my recovery has gone very well.
My cords still do not work so we still have to be careful that I do not get sick, and I am still pretty squeaky when get excited or mad. My mommy and daddy pray everyday that my cords will start working. If they do not start working on their own in the next few years, we may need to have more surgeries to help open the airway more. The doctors are however optimistic that I may get movement back since they can not find a cause.
Feel free to email my mommy if you would like more info about my cord immobility. We will keep you updated on this site.
Love,Connor
1 comment:
That's fantastic! Jonah is having rib graft surgery in just over a week for his VCP. I am so excited and anxious to have his trach out. I hope Connor keeps well and that his stridor goes away. All the best x
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