We went to visit with the doctor today to get the results of the PH test we did on Thursday and to discuss the surgery for tomorrow... But the hospital lost the data to the PH study. Soooo... We have to repeat the study tomorrow and the surgery is now scheduled for Thursday. More waiting.
Following the surgery we will be in the hospital 3-5 days and then the doctor would like us to stay in the area for another week after we are discharged from the hospital. So we will be hanging out in Rochester for another two weeks it looks like. It wouldn't be so bad if there was something here besides the Mayo Clinic, but there is not. : )
We will let you know how the surgery went on Thursday.
What in the world is wrong with me?
Besides developing an attitude at an early age, I have been diagnosed with Bilateral Vocal Cord Immobility (Paralysis). My vocal cords do move slightly, but do not open and close all the way like they should. Because they do not open all the way, my airway is too small for me to breathe if I have any swelling.
In July, my mommy and daddy took me up to Mayo to have a surgery done called vocal cord lateralization. They took one of my vocal cords and stitched it to the side of my larynx opening up my airway more. The surgery tripled my airway. Since the surgery we have had a few bumps in the road, but my recovery has gone very well.
My cords still do not work so we still have to be careful that I do not get sick, and I am still pretty squeaky when get excited or mad. My mommy and daddy pray everyday that my cords will start working. If they do not start working on their own in the next few years, we may need to have more surgeries to help open the airway more. The doctors are however optimistic that I may get movement back since they can not find a cause.
Feel free to email my mommy if you would like more info about my cord immobility. We will keep you updated on this site.
Love,Connor
In July, my mommy and daddy took me up to Mayo to have a surgery done called vocal cord lateralization. They took one of my vocal cords and stitched it to the side of my larynx opening up my airway more. The surgery tripled my airway. Since the surgery we have had a few bumps in the road, but my recovery has gone very well.
My cords still do not work so we still have to be careful that I do not get sick, and I am still pretty squeaky when get excited or mad. My mommy and daddy pray everyday that my cords will start working. If they do not start working on their own in the next few years, we may need to have more surgeries to help open the airway more. The doctors are however optimistic that I may get movement back since they can not find a cause.
Feel free to email my mommy if you would like more info about my cord immobility. We will keep you updated on this site.
Love,Connor
1 comment:
Brian, Staci and Connor, grandma and grandpa our praying for everything to be OK. The great physician and healer is with you. God is with you and will be bringing you home soon. We wish we could be with you maybe next weekend we can come visit. We love you all very much, take 1 day at time and it will be over before you know it. Love you God Bless. Mom
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