We made it home on Thursday. Connor had a follow-up on Wednesday and the doctor says everything is healing wonderfully. We will go back at the beginning of February to make sure his body did not reject the graft. If everything looks good, then we should be done with doctors and hospitals for good!
Here is a little video of the trip. Since we only spent a few days of it in the hospital, we took advantage of being in the city and sightseeing.
What in the world is wrong with me?
Besides developing an attitude at an early age, I have been diagnosed with Bilateral Vocal Cord Immobility (Paralysis). My vocal cords do move slightly, but do not open and close all the way like they should. Because they do not open all the way, my airway is too small for me to breathe if I have any swelling.
In July, my mommy and daddy took me up to Mayo to have a surgery done called vocal cord lateralization. They took one of my vocal cords and stitched it to the side of my larynx opening up my airway more. The surgery tripled my airway. Since the surgery we have had a few bumps in the road, but my recovery has gone very well.
My cords still do not work so we still have to be careful that I do not get sick, and I am still pretty squeaky when get excited or mad. My mommy and daddy pray everyday that my cords will start working. If they do not start working on their own in the next few years, we may need to have more surgeries to help open the airway more. The doctors are however optimistic that I may get movement back since they can not find a cause.
Feel free to email my mommy if you would like more info about my cord immobility. We will keep you updated on this site.
Love,Connor
In July, my mommy and daddy took me up to Mayo to have a surgery done called vocal cord lateralization. They took one of my vocal cords and stitched it to the side of my larynx opening up my airway more. The surgery tripled my airway. Since the surgery we have had a few bumps in the road, but my recovery has gone very well.
My cords still do not work so we still have to be careful that I do not get sick, and I am still pretty squeaky when get excited or mad. My mommy and daddy pray everyday that my cords will start working. If they do not start working on their own in the next few years, we may need to have more surgeries to help open the airway more. The doctors are however optimistic that I may get movement back since they can not find a cause.
Feel free to email my mommy if you would like more info about my cord immobility. We will keep you updated on this site.
Love,Connor
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